On February 29, 2024, Rare Disease Day, people across the world who are impacted by rare health conditions, or who are connected with the rare health community, were invited to contribute a personal video or audio recording and be part of a unique, collective film.
The resulting 14 minute film, ‘A Day of Rare Conditions’, connects together a diversity of rare and special voices, people, places and moments recorded and shared from Brazil, China, Denmark, France, Finland, Germany, Italy, the Philippines, Romania, Spain, Switzerland, UK and USA.
Edited by Nick Jordan
Soundtrack score by Otis Jordan
Audio & video footage by: Nour Ayad, Jacob Cartwright, Mariana Castiñeiras, Tallulah Rose Clark, Abelone Dreyer, Mariangels Duch Ferrer, Aleix Duch Ferrer, Daniel Ferrer, Minerva Ferrer, Elena Garcia, Romer Julaton Guerbo, Fatima Hamid, Carol Tina Howells, Nick Jordan, Aapo Koistinen, Rhona MacLeod, Ramona Moldovan, Mari Nieminen, Mahmoud Odeh, Jay Roche, Annike Schneider, Tamsin Scott, Samira El Shaer, Trif Stefan, Chapman Sum, Jie Qiao, and anonymous contributors.
Commissioned by RARE/D, The Whitworth Group, The University of Manchester,
Manchester University NHS Foundation Trust
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